22nd-29th April 2024

New #WPIWTalks Podcasts out now!

New podcast: spotlight on research

In our latest episode launched today, World PI Week hosts Prof. Isabelle Meyts, President of the European Society for Immunodeficiencies (ESID) and pediatric immunologist at the University Hospital Gasthuisberg, UZ Leuven in Belgium; and Dr. Emily Edwards, clinical researcher fellow at the Department of Immunology and Pathology at Monash University and Vice-President of the Australian patient organisation for PIDs (AusPIPS).  

They discuss the benefits of research and its role and impact on patients, families, medical practices as well as society as a whole. The podcast explores existing challenges surrounding research in PIDs, what the future of research may look like in the field, as well as the value of international collaboration.   To listen to this latest episode, make sure to tune into your preferred podcasting platform or click here

Also, tune into our episode on treatment and care, released 8 April!

World PI Week welcomed Dr. Frank Staal, from the Leiden University Medical School in the Netherlands; Dr. Adli Ali, from the UKM Medical center in Malaysia; and Stela Andreea Pirvu, member of the Association for Patients with Primary Immunodeficiencies (ARPID) in Romania.
This episode shares a unique combination of perspectives, including those of specialists on issues related to universal access to quality healthcare, as well as the perspective of a mother of a child who received a transplant a few years ago.
It gives a brief overview of main treatment options for PIDs and provides a glimpse into the promise of gene therapies and the role of transplantation in PID care.

Mark your calendar: one more Friday until World PI Week, so one more podcast coming at you soon!