22nd-29th April 2024

New Campaign on the Importance of Access to Quality Care for People Living with PID

Millions live with an inherited immune deficiency – or primary immunodeficiency – worldwide. Each of them deserves access to quality care. However, this is not the reality for all patients living with this disease.

Why does access to quality care matter?
Access to healthcare is a basic human right. People living with primary immunodeficiencies worldwide depend on it. It is fundamental to enhance health outcomes, improve social well-being and lessen the burden of the disease on individuals, families and healthcare systems.

About our campaign
Each day of World PI Week 2022, we will publish stories outlining the reasons why it is so important for patients to get access to quality care.

  • 22 April: Diagnosis
  • 23 April: Newborn Screening
  • 24 April: Genetic Testing
  • 25 April: Access to Specialist Doctors
  • 26 April: Life-saving Treatments
  • 27 April: Immunoglobin therapy & access to plasma
  • 28 April: Transplantation
  • 29 April: Gene Therapy

How you will be able to contribute
You can join on social media using #WorldPIWeek and #Accesstocarematters or via our #MyPIstory campaign

  • If you live with a PID: share your experience and what access to care means to you
  • If you are a health professional: explain why patients’ access to care is so important
  • If you are a supporter: relay our campaign messages to help us raise awareness and promote change so that every person living with a PID gets the care they deserve

We hope you will join the campaign, starting on the 22nd of April!