22nd-29th April 2024

Mental Health

Good mental health is as important as good physical health. However, it is sometimes difficult to talk about one’s mental health issues or emotional challenges. Being diagnosed with a chronic disease like PIDs and coping with it in daily life can be challenging and bring a lot of different emotions. But everyone’s situation is unique and there is no single way of dealing with these. However, seeking help or an attentive hear is very important.

This podcast episode explores different topics surrounding mental health, from the value of mental health promotion, well-being measures, to the latest insights from research in mental health & PIDs, and potential avenues to improve awareness of mental health at all levels, notably in society. A clinical psychologist and two patients share their experiences, learnings and tips that may be of support to other people experiencing difficult times or who may feel overwhelmed in the COVID-19 context and beyond.

Join us for a talk with:

  • Dr Mari Campbell, Royal Free London NHS Foundation Trust; University College London (UCL)
  • Magdalena Döragrip, Swedish Patient Organisation for PIDs (PIO)

Joined by Vivian Kohlberg, from the Bolivian PID Patients Group (FIDEP)

You can listen to the podcast on Spotify.

*This podcast covers topics that may be sensitive and/or emotional*

For more information:

Mind for better mental health (UK)

Mental wellbeing resources by the World Health Organisation (WHO)

Guidance on mental health & COVID-19 by the World Health Organisation (WHO)

Booklet on PIDs and Psychological Management by the International Patient Organisation for Primary Immunodeficiencies (IPOPI)

Handbooks for patients and families (including emotional life aspects) – chapters 42 to 46 for all age groups by the Immune Deficiency Foundation (IDF) Find us on Twitter, Instagram and Facebook to learn more about the World PI Week, keep up with the latest developments and join the discussion around the #WPIWTalks.