World PI Week is guided by a dedicated Steering Committee, composed of patient organisations, medical societies, nursing groups, and industry associations from across the globe – each committed to making a meaningful impact to the Primary Immunodeficiency community. With extensive collective experience in diagnosis and treatment, patient support, education, research and innovation, our Steering Committee ensures that World PI Week resonates not only with individuals affected by Primary Immunodeficiencies, but also family members, healthcare professionals, policy makers, and the general public, on a global scale.

United by a shared vision for timely diagnosis and equal, accessible and effective treatment, our Steering Committee members provide invaluable leadership, insight, and expertise into every campaign; devising annual themes, activities and resources that span across a wide range of audiences and platforms every single year. Their unwavering commitment is central to World PI Week – amplifying voices, bolstering research, shaping policies, and spreading vital awareness to achieve lasting change for Primary Immunodeficiency communities worldwide.

Please see below a list of the organizations that make up our Steering Committee, along with links to learn more about their work.