22nd-29th April 2024

World PI Week focuses each year on an important topic or challenge surrounding primary immunodeficiency, to increase awareness, understanding and bring about change in policy and healthcare practice.


Robust, quality health data is critical to enhance disease knowledge, healthcare delivery, medical
research and development, support policy and regulatory decisions; and ultimately benefit
patients as well as societies. Data can change lives by speeding up diagnosis, improving patient care, and fostering research into new treatments. In this light, in 2023 World PI Week focused on: Turning real-world data into knowledge for better PID care: Improving access to diagnosis, treatment and care for PID patients through collaborative & real-world data use.

Read the campaign report here and press release here.


Access to healthcare is a basic human right. People living with primary immunodeficiency worldwide depend on it. Each of them is entitled to the correct diagnosis, quality treatment and care. To that end, the 2022 campaign focused on four themes: early diagnosis & newborn screening, treatment & care, research and preventative medicine.

Read the campaign report here and press release here.


Protecting and improving the lives of the millions of people living with primary immunodeficiency worldwide by supporting early diagnosis and access to care was the theme of the 2021 campaign, which embraced the following topics: plasma availability, patient safety & protection (focus on vaccination), quality of life & health outcomes.

Read the campaign outcome report here and press release here.


In 2020, World PI Week celebrated its 10th anniversary. 10 years of collaboration and awareness raising across the globe. The campaign was therefore all about celebrations.

Celebrating life and what keeps the community moving forward. Celebrating 10 years of solidarity, successes and expectations for the future of primary immunodeficiency diagnosis, care and quality of life worldwide.

In light of the COVID-19 pandemic and to mark the anniversary year, the campaign started on April 22 and run for 10 weeks until July 1. Recognizing World PI Week came with additional meaning in the COVID-19 context.

More information here. The outcome press release is available here


World PI Week 2019 put the spotlight on the importance of a holistic approach to patient-centred care, in order to improve the care and quality of life of patients and their families around the world.
More information here

Read the World PI Week 2019 campaign outcome press release here


In 2018, World PI Week focused on early testing and diagnosis: “My future starts with early testing and diagnosis of primary immunodeficiency”.
More information here


In 2017, World PI Week highlighted the need to ensure access to life-saving immunoglobulin therapies for people with primary immunodeficiency worldwide.


The year 2016 brought the topic of access to care at the forefront of the campaign: “Into action: Improving access to optimum care for all primary immunodeficiency patients”.


In 2015, World PI Week drew attention to the importance of vaccination and immunoglobulin treatment for patients with primary immunodeficiency diseases.


In 2014, newborn screening was the main theme of the World PI Week: “A call for newborn screening to test for severe combined immunodeficiencies”.


The 2013 World PI Week theme was “Primary Immunodeficiency: Turning Hope into Action!”


In 2012, World PI Week focused on access to appropriate treatment.


2011 marked the first World PI Week, and put the spotlight on primary immunodeficiency disease globally under the theme “Let’s talk about PI!”
More information here

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Recent News

  • World PI Week Comic Book Chapter 4 & 5 RELEASED


  • World PI Week 2024: PID Ambassadors


  • World PI Week 2024: Press Release


  • Chapter 2 of the World PI Week Digital Comic Book is Here!


  • Coming Soon: World PI Week Map of PID Advancements


  • Launch of World PI Week’s First Digital Comic Book: Chapter 1!


See all World PI Week updates