22nd-29th April 2024

Patient’s experience survey of Primary Immunodeficiency Disorders (PID) services

Over the course of 3 months (March-May 2016) those affected by PID in the UK were asked to answer questions about their experience of diagnosis and treatment. A total of 303 responses were collected.

The results of the survey highlight the importance of early diagnosis and providing access to different treatment options and modes of administration to ensure individual patient needs are best met. The findings have important implications for all users of the data, and particularly for NHS policy makers, commissioners and providers and will guide Immunodeficiency UK in its work to improve the quality of care for everyone living with PID