22nd-29th April 2024

Launching the new LASID Registry Platform

The LASID Registry collects basic information about the diseases affecting patients in every participating country. Specific information regarding the clinical and laboratory presentation of most PID is entered by the participating centres, and basic statistics are generated about every two months containing not only the number of patients and their diseases, but also the degree of input from every centre registering the patients. The core of the Registry is to serve as a platform that will foster clinical research on the different aspects of PID such as epidemiology, the genetic basis of these diseases, diagnosis and treatments, amongst others. In addition, the Registry collects information about the use of immunoglobulin replacement therapy for the different diseases.