22nd-29th April 2024

First national Immunodeficiency Strategy (focused on PIDs)

ASCIA has worked in collaboration with patient organisations IDFA, AusPips, IDFNZ and HAE Australia and other stakeholders to develop the Strategy. The first goal is to enable early diagnosis of severe combined immune deficiency (SCID) by newborn screening of the Australian population.

Following the Strategy launch and advocacy by patient organisations, the formal recommendation for SCID to be included in Australian Newborn Bloodspot Screening Programs was recently announced in a media statement by the Australian Government https://lnkd.in/dYk4jRvi